Through Our Eyes at One Retinoblastoma World 2017

Parents and survivors shared their thoughts on the “Through Our Eyes” wall at the One Rb World meeting in Washington D.C., 9-11 October 2017. These powerful insights were gathered anonymously via this website during September 2017, and highlight wide-ranging concerns.

One Rb World group photo

One Retinoblastoma World 2017, Washington D.C.

Focused on best care for all, One Rb World 2017 included the first ever US national Family & Survivor Day. The collaborative program covered awareness, treatment, parent advocacy, life-long care, research, child life and the pathway to progress for our global community.

A young boy is wrapped up in a hug from an Elmo character.

I Am a Child, Not a Case!

Children with retinoblastoma are much more than a medical specimen. To achieve complete cure, we must consider them as a whole person, not just an eye or a body to be treated. A single word can completely change our focus.

A child's hand grasps a gold ribbon. The child's hand rests in the palm of an adult hand.

Are You Childhood Cancer Aware?

Childhood cancer is the leading disease killer of children in developed countries; second most common among children aged 1 to 15 in developing countries. With statistics and insights from parents and survivors, we explore the realities around the world.

Three young girls enjoy riding down a slide together on a sunny day.

Parents and Survivors Can Help Doctors Create Great Retinoblastoma Care

Being the parent of a child with retinoblastoma, or living with the effects of this cancer, can be frustrating. We look at a few challenges and ways we can help the medical community advance care.

Poster showing a child with one eye glowing white and the other, red. Caption above reads "a white glow in a child's eye could be a sign of cancer". Instructions below describe the PhotoRED technique.

How Do We Achieve Early Diagnosis of Retinoblastoma?

Retinoblastoma specialists agree that early diagnosis of eye cancer is a child’s best hope of survival, retaining some vision or their eye. Yet around the world, thousands of children die, and more than half of children who are cured lose at least one eye. We consider the potential and limitations of six solutions to improve early diagnosis.

The Lincoln Memorial, lit up in gold against a deep blue sky.

Revisit One Rb World and SIOP 2016 (Dublin)

We are looking forward to One Rb World and SIOP 2017 in Washington D.C. this October. Read about the 2016 One Rb World meeting and International Society of Paediatric Oncology World Congress in this blog mini series, originally shared later last year.

A seasonal greeting framed with gold bells, gilded baubles, gold fircones and lush foliage. The message reads: wishing you comfort and joy this holiday season.

Share the Gift of Healing Christmas Love

The real spirit of the Holiday Season is not to be found in a festive dinner or brightly wrapped presents under a tree, but in our dedication to helping those around us, in the sharing of hope, peace and friendship. Our CEO, Abby White, shares her mother’s memory of healing Christmas love when Abby was an infant being treated for eye cancer, and some helpful hints to support families in need this year.

The image shows a candle wick apparently dancing within the light of the flame and the muted golden glow encircling it, fading into surrounding darkness. The superimposed quote reads: "Children with cancer are like candles in the wind who accept they are in danger of being extinguished by an unexpected gust, and yet, as they flicker and dance through the storm, their brilliance challenges the darkness and dazzles those of us who watch their light."

RAE of Hope – Raising Awareness & Empowerment

There’s a new RAE of Hope in the retinoblastoma world this September as we shine the light on childhood eye cancer. Thomas Reid is a survivor, father of a survivor and a Director of WE C Hope USA. The entire Reid Family dedicates Childhood Cancer Awareness Month to Raising Awareness and Empowerment as they help children, adult survivors and their families share their experience of retinoblastoma and how it has shaped their lives. Watch the RAE of Hope videos and be inspired.

Caroline Aherne, January 2016

RIP Caroline Aherne, Comedienne and Retinoblastoma Survivor

British comedy writer and actress Caroline Aherne sadly died on Saturday, July 2nd, after suffering lung cancer linked to her retinoblastoma diagnosis as a child. Caroline is best known as creator of Mrs. Merton and the Royle Family TV shows. Her humour brought laughter to millions around the world, but she also used it to stay sane during her multiple cancer battles.