Treasure Flower - a rare species of daisy with a bright yellow core surrounded by a darker ring that radiates into the fiery orange and yellow petals.

Loving Without Fear

As a survivor of bilateral retinoblastoma, I am challenged to be supportive of dear friends facing their own second cancer journey, without being swamped by fear for my own future. I imagine this is a similar balancing act for parents whose children are in treatment now, as social media increasingly brings us into contact with families struggling to access appropriate care for their child.

Metal Gold Ribbon Lapel Pin.

Going for Gold to Reach Our Goal.

Recently, a number of people have asked why we promote the childhood cancer gold ribbon and not a ribbon uniquely for retinoblastoma. This is a good question – here are our three key reasons…

RbCoLab pathology scanner

Grand Challenges: Life Saving Cancer Pathology in Africa

Our Global Rb Scientist, Dr. Helen Dimaras, is leading a major initiative to advance digital pathology consultations at our pathology Lab in Nairobi, thanks to a $100,000 grant from Grand Challenges Canada. The digital RbCoLab will significantly improve care for each child by rapidly identifying their true risk and need for further treatment after their eye has been removed.

Abby White, Iyowane (16 months), Cecelia (Iyowane’s mother), Melaia (Sera’s mother), Sera (8) and her sister, Siteri (3).

Up Front Down Under

I thought I had a fair understanding of the difficulties faced by families whose children have cancer in a developing country, The visit opened my eyes to an entirely different world. Spending time with the families in Fiji really brought home to me the harsh realities of this situation.

Celebrating a successful week of training in Eldoret.

Child Life: Training for Best Care

Our child life leaders are excited to be bringing child life skills to the children they care for. Their knowledge, vision and dedication will enrich paediatric health care and children’s lives beyond measure.

Any child can be a princess (or prince) even after their eye is removed.

Why Refuse Eye Removal Surgery?

People often ask me incredulously “why would parents refuse eye removed surgery if it’s the only way to save their child’s life?” This is a very important question. Understanding the complex answers helps us care for families to ensure children have the best chance of cure.

An overwhelmed mother comforts her child in hospital.

Two Children – Two Very Different Journeys.

Two children. The same affliction. Drastically different outcomes. Yet each story represents the most common reality for children with retinoblastoma in these respective parts of the world.

Maycie's Very Special Bag

A Special Vision About Special Eyes

The challenges surrounding eye removal stigma are complex, but our passion to overcome them is stronger. I feel honoured to have a special eye and to be able to use it to help spread the message and save lives.