One Retinoblastoma World, Dublin 2016 – Part 2

Dublin, Day 2 of One Retinoblastoma World 2016, a global meeting of highly committed retinoblastoma advocates. Focused on best care for everyone, we discussed common sense primary treatment and the pros and cons of eye salvage for child and eye, building effective care in developing countries, innovations for global care, and the pathway to progress for our global community.

Rachel Brennan

One Retinoblastoma World, Dublin 2016 – Part 1

The land of 100,000 welcomes warmly greeted our global childhood eye cancer community in October. Dublin enthusiastically hosted One Retinoblastoma World 2016, before the world congress of the International Society of Paediatric Oncology. A meeting of highly committed doctors, parents, survivors, researchers and advocates from six continents, focused on best care for everyone affected by retinoblastoma.

The image shows a candle wick apparently dancing within the light of the flame and the muted golden glow encircling it, fading into surrounding darkness. The superimposed quote reads: "Children with cancer are like candles in the wind who accept they are in danger of being extinguished by an unexpected gust, and yet, as they flicker and dance through the storm, their brilliance challenges the darkness and dazzles those of us who watch their light."

RAE of Hope – Raising Awareness & Empowerment

There’s a new RAE of Hope in the retinoblastoma world this September as we shine the light on childhood eye cancer. Thomas Reid is a survivor, father of a survivor and a Director of WE C Hope USA. The entire Reid Family dedicates Childhood Cancer Awareness Month to Raising Awareness and Empowerment as they help children, adult survivors and their families share their experience of retinoblastoma and how it has shaped their lives. Watch the RAE of Hope videos and be inspired.

Caroline Aherne, January 2016

RIP Caroline Aherne, Comedienne and Retinoblastoma Survivor

British comedy writer and actress Caroline Aherne sadly died on Saturday, July 2nd, after suffering lung cancer linked to her retinoblastoma diagnosis as a child. Caroline is best known as creator of Mrs. Merton and the Royle Family TV shows. Her humour brought laughter to millions around the world, but she also used it to stay sane during her multiple cancer battles.

"Our lives begin to end the day we become silent about things that matter" - MLK Jr.

Top 10 Rarely Discussed Subjects in Retinoblastoma

Retinoblastoma is a complex childhood cancer with significant impacts during treatmet and beyond, often continuing throughout life. What are the least discussed subjects in Rb research and care? Why do they matter, and how can research in these areas improve care and quality of life? Rb Survivor, Abby White explores 10 varied topics affecting patients, survivors, and family members at different stages of life.

"Peace does not mean being in a place with no noise, trouble or hard words, but to be in the midst of those things with a calm heart." Anon.

Look After You – Self-CARE Lifesavers

Self-care is vital for all who are impacted by childhood cancer – parents, survivors of all ages and the medical professionals who care for us. Give yourself permission to take time out for you every day! Here are some self-CARE tips to help create inner calm that will dramatically improve your quality of life and the lives of those you care for.

Fire Lilies - deep orange lilies set against a green grass background.

Fire Lilies: living with a Rare Cancer Syndrome

“I have retinoblastoma”. Medical professionals would correct me – “you had retinoblastoma – now you are cancer-free”. But am I really free from cancer?

LifeCourage Firewalk

Walking Through The Fire