The Canadian Retinoblastoma Research Advisory Board is working with patient families to guide future research priorities. Engaging parents and survivors can lead to improved health outcomes. Read on and sign up today.
Expert retinoblastoma pathology identifies cancer spread to outer layers of the eye or the optic nerve, guiding post-operative care. Accurate, timely pathology is key to long-term survival when a child has advanced cancer.
Being the parent of a child with retinoblastoma, or living with the effects of this cancer, can be frustrating. We look at a few challenges and ways we can help the medical community advance care.
Abby White, WE C Hope co-founder and volunteer CEO, shares her experience of living with the consequences of bilateral retinoblastoma, and her very personal journey to the organization’s birth.
Meeting others who know understand life with retinoblastoma is a priceless gift. Marissa Gonzalez reflects on an afternoon of fun, friendship, knowledge and hope at the first CHLA Retinoblastoma Family Day.
The real spirit of the Holiday Season is not to be found in a festive dinner or brightly wrapped presents under a tree, but in our dedication to helping those around us, in the sharing of hope, peace and friendship. Our CEO, Abby White, shares her mother’s memory of healing Christmas love when Abby was an infant being treated for eye cancer, and some helpful hints to support families in need this year.
A special session at the 2016 World Congress of Paediatric Oncology was hosted in memoriam of Alfred G. Knudson, Jr., MD, PhD, who died in July. Knudson developed his “two-hit hypothesis” after years of observing children with retinoblastoma, and this now forms the backbone of cancer genetics. The session focused on most effective staging for retinoblastoma, identifying and treating high risk children.
The International Society of Paediatric Oncology World Congress promotes a holistic approach to care. Through a unique collaboration of multiple diverse organizations, the program embraces almost every element of childhood cancer care and survivorship. Dublin hosted an inspired SIOP 2016 congress, October 19-22, a global village with a united voice and energy for all children and their families.
Dublin, Day 2 of One Retinoblastoma World 2016, a global meeting of highly committed retinoblastoma advocates. Focused on best care for everyone, we discussed common sense primary treatment and the pros and cons of eye salvage for child and eye, building effective care in developing countries, innovations for global care, and the pathway to progress for our global community.
The land of 100,000 welcomes warmly greeted our global childhood eye cancer community in October. Dublin enthusiastically hosted One Retinoblastoma World 2016, before the world congress of the International Society of Paediatric Oncology. A meeting of highly committed doctors, parents, survivors, researchers and advocates from six continents, focused on best care for everyone affected by retinoblastoma.
