A positive, open relationship between parents and the child’s medical team is vital throughout treatment and beyond. A therapeutic alliance requires good communication, mutual trust, respect and care, as well as knowledge and skills to provide high quality medical care.
Intraocular retinoblastoma is classified and staged to help doctors describe the degree of cancer in a child’s eye, determine best treatment options, define potential for cure / eye salvage, and compare impact of different therapies. Each eye is classified to define potential for safely saving the eye / vision. Stage of bilateral Rb is based on the worst affected eye, as an indicator of risk to the child’s life. When an eye might be classified into one of two groups, the higher risk group should be selected. This reduces risk of eye loss or life threatening relapse due to under-treatment.
Taking photographs to check for red eye reflex is one of the best ways parents can detect early signs of serious eye disease in young children. Here we explain red eye photography and the simple technique all parents should know to check for healthy red reflex in children.
In early 2013, treatment was cancelled without warning for several Arizona children receiving care at Children’s Hospital of Los Angeles. No alternative plans were offered for essential life / sight saving therapy. The families approached Daisy’s Eye Cancer Fund for help. Read on to find out how we worked on their behalf to protect the children’s access to high quality on-going care.
11 years ago, a new baby girl was born in Botswana. Four short years later, retinoblastoma claimed her life. Her name means love, and today, her legacy continues to build hope for other children around the world.
