When Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of retinoblastoma centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, the key destination was not even on her itinerary…
What does it mean to be told your 12 week old baby has a rare eye cancer? Jim Valavanis shares his experience of first-time parenting, nearly five years of childhood cancer treatment, and Life Through Sam’s Eyes – the hope-filled book that emerged from his healing journey.
New beginnings, hopes, dreams, possibilities, resolutions. January is an ideal time to explore how we can make our daily lives happier. Our volunteer CEO, Abby White, shares New Year greetings, tips for a happier 2018, and a personal message of change as the New Year begins.
Season’s Greetings. Bright lights adorn trees, festive music cheers the soul, and gifts the world over bring joy to those we love. This is a special time for celebration and reflection, for coming together as a community, and sharing hope. Especially when a child has cancer…
Parents and survivors shared their thoughts on the “Through Our Eyes” wall at the One Rb World meeting in Washington D.C., 9-11 October 2017. These powerful insights were gathered anonymously via this website during September 2017, and highlight wide-ranging concerns.
Focused on best care for all, One Rb World 2017 included the first ever US national Family & Survivor Day. The collaborative program covered awareness, treatment, parent advocacy, life-long care, research, child life and the pathway to progress for our global community.
Focused on best care for all, One Rb World 2017 included the first ever US national Family & Survivor Day. The collaborative program covered awareness, treatment, parent advocacy, life-long care, research, child life and the pathway to progress for our global community.
A special session at the 2016 World Congress of Paediatric Oncology was hosted in memoriam of Alfred G. Knudson, Jr., MD, PhD, who died in July. Knudson developed his “two-hit hypothesis” after years of observing children with retinoblastoma, and this now forms the backbone of cancer genetics. The session focused on most effective staging for retinoblastoma, identifying and treating high risk children.
The International Society of Paediatric Oncology World Congress promotes a holistic approach to care. Through a unique collaboration of multiple diverse organizations, the program embraces almost every element of childhood cancer care and survivorship. Dublin hosted an inspired SIOP 2016 congress, October 19-22, a global village with a united voice and energy for all children and their families.
Dublin, Day 2 of One Retinoblastoma World 2016, a global meeting of highly committed retinoblastoma advocates. Focused on best care for everyone, we discussed common sense primary treatment and the pros and cons of eye salvage for child and eye, building effective care in developing countries, innovations for global care, and the pathway to progress for our global community.
