Butterfly feeding from a cactus flower

The Cactus and the Butterfly: Advocating Best Care for America’s Children.

In early 2013, treatment was cancelled without warning for several Arizona children receiving care at Children’s Hospital of Los Angeles. No alternative plans were offered for essential life / sight saving therapy. The families approached Daisy’s Eye Cancer Fund for help. Read on to find out how we worked on their behalf to protect the children’s access to high quality on-going care.

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DIY Guide to Assess Medical Information and Research (Part 1)

LifeCourage Firewalk

Walking Through The Fire

Beautiful Rati During Treatment.

In Her Memory…

11 years ago, a new baby girl was born in Botswana. Four short years later, retinoblastoma claimed her life. Her name means love, and today, her legacy continues to build hope for other children around the world.

Firewalk

Beyond Retinoblastoma

Childhood Cancer Day Awareness Flyer, a partnership of the International Confederation of Childhood Cancer Parent Organisations (ICCCPO) and the International Society of Paediatric Oncology (SIOP).

Are You Child Cancer Aware?

The earlier cancer is diagnosed, the easier it is to treat, often requiring less intense therapy and fewer invasive procedures that have lower cost physically, emotionally and financially. Awareness of childhood cancer is key to achieving early diagnosis, saving lives and limiting the burden of cancer treatment on the child, family and wider society.

Treasure Flower - a rare species of daisy with a bright yellow core surrounded by a darker ring that radiates into the fiery orange and yellow petals.

Loving Without Fear

As a survivor of bilateral retinoblastoma, I am challenged to be supportive of dear friends facing their own second cancer journey, without being swamped by fear for my own future. I imagine this is a similar balancing act for parents whose children are in treatment now, as social media increasingly brings us into contact with families struggling to access appropriate care for their child.

Metal Gold Ribbon Lapel Pin.

Going for Gold to Reach Our Goal.

Recently, a number of people have asked why we promote the childhood cancer gold ribbon and not a ribbon uniquely for retinoblastoma. This is a good question – here are our three key reasons…

RbCoLab pathology scanner

Grand Challenges: Life Saving Cancer Pathology in Africa

Our Global Rb Scientist, Dr. Helen Dimaras, is leading a major initiative to advance digital pathology consultations at our pathology Lab in Nairobi, thanks to a $100,000 grant from Grand Challenges Canada. The digital RbCoLab will significantly improve care for each child by rapidly identifying their true risk and need for further treatment after their eye has been removed.