Retinoblastoma Treatment and Vision – The Double-Edged Sword

When eye cancer is diagnosed early, it may be possible to save a child’s eye or even sight. But tumours and treatments themselves affect vision. Sandra Staffieri, orthoptist and Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, reviews how different retinoblastoma therapies can impact the eye, and how parents can support their child.

Microscope image of coronavirus

Retinoblastoma Care During the COVID-19 Pandemic

COVID-19 continues to impact life and medical care. WE C Hope CEO Abby White reviews the facts of COVID-19, how we can protect ourselves and others, COVID testing, retinoblastoma care during the pandemic, safe travel to medical care, and how to support ourselves and our children.

Eleni stands on a waterside path. A little distance behid her, a fountain shoots a tall jet of water high into the air.

Life After Enucleation: 8 Retinoblastoma Survivors Share Hope

Despite advances in eye saving therapy for retinoblastoma, removing a child’s eye remains the most common treatment worldwide. Rb survivor and WE C Hope CEO, Abby White, shares her perspective of life after enucleation, and experiences from seven fellow survivors, offering hope to parents facing the reality of enucleation.

Enucleation, Life and Support: A Parent and Survivor Perspective

When a child has retinoblastoma, removing the affected eye remains the most common treatment worldwide to save life. Support is vital throughout treatment and long after. Lori and Grace Padilla share the perspective of a parent and a young adult survivor, their thoughts on enucleation, and the benefits of in-person support groups.

A boy wearing a hospital gown lies in hospital bed. He is attached to many monitors and tubes, smiling and giving a thumbs up.

10 Things Parents Want You to Know About Retinoblastoma

Caring for a child with retinoblastoma and healthy siblings is a complex journey for parents, from before diagnosis, through treatment, and beyond. Rb Mom and WE C Hope USA director, Lori Banos, shares 10 key messages parents have for health care professionals, fellow parents and the wider community.

A woman wearing a harness stands on a ship high above the waves. The setting sun and sail ropes are visible behind her.

10 Things Retinoblastoma Survivors Want You To Know

Retinoblastoma is highly curable. But for many survivors, it has lifelong impacts. In 2019, our Alphabet of Hope shared survivor insights of #LifeBeyondRb. Rb Survivor and 2019 alphabet curator, Abby White, highlights 10 important messages from survivors about life beyond treatment and cure of childhood eye cancer.

The gold pin on a compass points to the word "survivorship"

7 Survivorship Tips and Tricks: navigating the adult post-retinoblastoma world

Diagnosis and treatment of eye cancer in early childhood is only the start of a lifelong story for many individuals affected by retinoblastoma. Marissa Gonzalez, Rb survivor and President of World Eye Cancer Hope USA, shares seven tips for being an active participant in your retinoblastoma survivorship journey.

A young girl with blond hair and wearing a Minnie mouse dress is standing on a small round trampoline, holding on to the arched handle. She has a white pupil glow in one eye, and her other eye is turned outwards.

If You Tell Them, They Will Know: raising awareness of retinoblastoma signs can save lives, eyes and sight.

Strabismus (turned eye) and leukocoria (white pupil) are the most common early signs of retinoblastoma.  Sandra Staffieri, Rb Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explores why parent and healthcare provider awareness of these signs is vital to early diagnosis of childhood eye cancer.

A mother and young child face one another oon couch while talking.

How To Support Siblings of Children With Retinoblastoma

Siblings of children with retinoblastoma often experience big fears, worries and emotions when their brother or sister is first diagnosed, during treatment, and beyond. Early Years Educator and Child Life Intern Keanna Gordon explores childhood eye cancer from the sibling’s perspective, and how parents can best support their wellbeing.

A woman sits alone on a couch at home.

Coronavirus: How to Protect Your Mental Health During Home Isolation

The coronavirus pandemic and social distancing measures are a high stress experience that may increase the risk of PTSD in an individual already susceptible due to childhood cancer trauma. Abby White explores 11 ways we can protect our mental health through the crisis, and reduce the risk of long-term negative effects.