Sleep is our superpower – consistent, quality sleep helps both mind and body function at their best. But many children struggle to sleep well, with potentially significant negative effects. Paediatric nurse and child life specialist, Cindy Pilchuk, explores simple, practical ways parents and caregivers can help children fall asleep more easily and have a restful night.
The glorious visual spectacle of this Holiday Season can exclude and isolate a child with vision loss from retinoblastoma, but we can experience these traditions with all our senses. In part 2 of this festive blog, bilateral Rb Survivor, Abby White, shares six more ways to include blind and visually impaired children in Holiday traditions, creating delight for the whole family.
When a child has vision loss from retinoblastoma, highly visual aspects of this Holiday Season can be challenging, exclusionary and isolating. But a little thought and creative adaptation can completely change the experience. In part 1 of this 2-part blog, bilateral Rb Survivor, Abby White, shares 12 ways to include blind and visually impaired children in traditional Holiday activities.
Friendships are a huge part of our lives; they bring us so much joy, comfort, motivation, and hope. But our friends can also hurt us and make us feel sad – friends can even be bullies. What exactly is “Friendship Bullying”? How do you identify it, stop it, and heal from the pain? Morgan Livingstone CCLS has written this blog for our young friends who may be experiencing bullying behavior from a friend or group of friends.
On 1-3 October, we hosted a hope-filled One Rb World 2021 meeting. Planning and hosting is always an adventure, and the 6th One Rb World was especially so! Co-Chairs, Dr. Sandra Staffieri PhD, Rb Care Co-Ordinator, Royal Children’s Hospital, Melbourne, Australia, and Marissa Gonzalez, Bilateral Rb Survivor and President, World Eye Cancer Hope USA, share behind-the-scenes insight and conference highlights.
Thursday October 14 is World Sight Day, and this year’s global campaign is “Love Your Eyes”. The International Association for the Prevention of Blindness encourages us to prevent eye disease with a healthy lifestyle, protect our eyes with small daily actions, preserve vision with regular eye exams, and prioritize eye health. Bilateral Rb Survivor. Abby White, shares 10 ways you can love your eyes every day.
Young children are often overwhelmed by big emotions in the natural process of their development. When they face ongoing stressors like cancer or a pandemic, giving them support, tools and skills to learn about and work through their emotions is critical. Child life specialist Rebekah Reimer provides some practical guidance to help.
As the 6th One Retinoblastoma World Conference fast approaches, this year’s organizers Sandra Staffieri and Marissa Gonzalez, together with Megan Webber, are excited to share an update. They give an overview of the program, highlighting some of the sessions and goals, and the need for global discussion and collaboration involving all stakeholders.
When children may inherit retinoblastoma, deciding how to start a family awakens new feelings in survivors. Every possible option comes with complex questions and emotional costs, and survivors and their partners may experience feelings of isolation as they navigate their decisions. Rb survivor Ruth Greenslade shares her reasons for deciding to have children, and her personal perspective of factors to consider when conceiving with heritable Rb.
How would you access the information in an image if you can’t see it? How would you enjoy it and feel part of the community talking about it? Making images accessible to blind and partially sighted people is vital. Bilateral Rb Survivor. Abby White, explains what alt-text is, how to provide inclusive image description, and why this matters in our retinoblastoma community.