Google, AI, and social media play an increasingly significant role in the lives of families affected by retinoblastoma, but without careful use, they can complicate a child’s medical care and even put life at risk. Dr. Jesse Berry shares her recommendations for being a safely informed, engaged parent advocate in the modern hyper-connected age.
https://wechope.org/wp-content/uploads/2018/03/Examining-Ruby-Eyes.jpg22503372Kristen Smallhttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgKristen Small2025-09-29 08:00:252025-09-29 08:09:20The Informed Parent: 6 Tips for Staying Up to Date in a Social Media World
On March 10, 2019, our beloved child life specialist Jayne Kamau died aboard Ethiopian Airlines flight ET302 as she returned home from SIOPAfrica in Cairo. WE C Hope Child Life Director, Morgan Livingstone, reflects on more than a decade of mentoring, friendship and working together to advance child life in Kenya. Co-authored with WE C Hope CEO, Abby White.
https://wechope.org/wp-content/uploads/2019/03/Jayne-with-oncology-patient-wearing-Magic-Yarn-princess-wigs.jpg18381769Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-09-15 08:00:492025-09-15 08:01:41Jayne Kamau, My Friend and Colleague
Why should we be concerned about childhood cancer awareness when it accounts for only 1-3% of all cancers? Surely its rarity means the impact on society and childhood deaths is low? Not True! Bilateral Rb survivor and WE C Hope CEO, Abby White, explores the realities of childhood cancer, sharing personal experience, and insights from parents and fellow survivors,
https://wechope.org/wp-content/uploads/2017/08/Gold-Ribbon-Hands.jpg960720Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-09-01 08:00:352025-09-01 08:06:36Are You Childhood Cancer Aware?
Infants experience a wide range of emotions, the depths of which are just beginning to be understood. Morgan Livingstone CCLS discusses how the external environment influences infant mental health, and the varied ways parents and medical professionals can help babies cope and thrive through medical interventions.
https://wechope.org/wp-content/uploads/2018/06/1RBworld2017-After-Mask-Play-Support.jpg32262419Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-08-18 08:00:392025-08-18 08:04:267 Ways Caregivers Can Support Infant Mental Health during Cancer Care.
Childhood eye cancer and its lifelong impacts can overwhelm and isolate – connecting with others who understand is vital for healing. On May 3rd, 2025, 40 young patients, survivors, families and friends gathered to celebrate and support the amazing Rb community in Northern California. Bethany Folks, WE C Hope USA Executive Assistant and Event Volunteer, reflects on a wonderful afternoon with Rb families in the Bay Area.
https://wechope.org/wp-content/uploads/2025/07/7.-Linden-Myra-do-Eyedrops-with-Bethany.jpg16002400Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-08-04 08:00:012025-08-04 18:33:57Our Retinoblastoma Community Shines in the Golden City
Parenting children through retinoblastoma is tough. Being their chief advocate is one of your most important roles throughout their cancer experience. Rb Survivor and WE C Hope CEO, Abby White, discusses why parents and caregivers should advocate for child life support, how to ask for child life services, and how to work effectively with child life professionals for the best outcomes.
https://wechope.org/wp-content/uploads/2022/02/Comfort-Massage-Building-Trust-052-scaled.jpg19202560Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-07-21 08:00:282025-07-21 08:01:22How to Advocate for Child Life Support in Your Child’s Medical Care
Talking about a child’s cancer with family and friends can be deeply cathartic for parents one day, and utterly exhausting the next. Asking for and receiving help can be a minefield too. Morgan Livingstone CCLS explores why this is so, and offers tips and tools to reduce stress, improve coping and boost effective practical support.
https://wechope.org/wp-content/uploads/2019/01/Whole-Family-Affected.png420668Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-07-07 08:00:302025-07-07 08:03:17Talking About Your Child’s Cancer Diagnosis With Family and Friends
Hot weather and changing holiday routines – summer can be unsettling for babies and young children. Add retinoblastoma to the mix, and achieving good sleep at this time of year can be very hard for affected children and siblings. Morgan Livingstone CCLS explains how infant massage can help, offering specific practical ways to improve sleep during sultry summer months, whether or not a child is receiving cancer care.
Childhood cancer care is often a long and winding road for the entire family, with many successes and setbacks, triumph, despair, and new hope. WE C Hope Director, Lori Baños, creator and moderator of the Facebook group Rb Moms, reflects on the wild rollercoaster ride when a child is diagnosed with eye cancer. With contributions from group members.
https://wechope.org/wp-content/uploads/2025/06/Rb-Rollercoaster-Mom-AI-gen.png10241536Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-06-09 08:00:572025-06-22 12:53:20The Retinoblastoma Rollercoaster: A Journey Through the Eyes of Rb Moms
When retinoblastoma changes everything, connection and understanding are vital. Family Days provide a soothing space for families and survivors to gather, share, and heal together. WE C Hope USA President, Marissa Gonzalez, and our blog curator, Abby White, explore how these special events foster community, joy, and hope across the retinoblastoma journey.
https://wechope.org/wp-content/uploads/2024/04/Swallow-Hill-Kids-Drums.JPG-scaled.jpg19202560Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2025-05-26 08:00:572025-05-15 12:02:24Retinoblastoma Family Days: Building Connection, Camaraderie, and Hope
The Informed Parent: 6 Tips for Staying Up to Date in a Social Media World
Google, AI, and social media play an increasingly significant role in the lives of families affected by retinoblastoma, but without careful use, they can complicate a child’s medical care and even put life at risk. Dr. Jesse Berry shares her recommendations for being a safely informed, engaged parent advocate in the modern hyper-connected age.
Jayne Kamau, My Friend and Colleague
On March 10, 2019, our beloved child life specialist Jayne Kamau died aboard Ethiopian Airlines flight ET302 as she returned home from SIOPAfrica in Cairo. WE C Hope Child Life Director, Morgan Livingstone, reflects on more than a decade of mentoring, friendship and working together to advance child life in Kenya. Co-authored with WE C Hope CEO, Abby White.
Are You Childhood Cancer Aware?
Why should we be concerned about childhood cancer awareness when it accounts for only 1-3% of all cancers? Surely its rarity means the impact on society and childhood deaths is low? Not True! Bilateral Rb survivor and WE C Hope CEO, Abby White, explores the realities of childhood cancer, sharing personal experience, and insights from parents and fellow survivors,
7 Ways Caregivers Can Support Infant Mental Health during Cancer Care.
Infants experience a wide range of emotions, the depths of which are just beginning to be understood. Morgan Livingstone CCLS discusses how the external environment influences infant mental health, and the varied ways parents and medical professionals can help babies cope and thrive through medical interventions.
Our Retinoblastoma Community Shines in the Golden City
Childhood eye cancer and its lifelong impacts can overwhelm and isolate – connecting with others who understand is vital for healing. On May 3rd, 2025, 40 young patients, survivors, families and friends gathered to celebrate and support the amazing Rb community in Northern California. Bethany Folks, WE C Hope USA Executive Assistant and Event Volunteer, reflects on a wonderful afternoon with Rb families in the Bay Area.
How to Advocate for Child Life Support in Your Child’s Medical Care
Parenting children through retinoblastoma is tough. Being their chief advocate is one of your most important roles throughout their cancer experience. Rb Survivor and WE C Hope CEO, Abby White, discusses why parents and caregivers should advocate for child life support, how to ask for child life services, and how to work effectively with child life professionals for the best outcomes.
Talking About Your Child’s Cancer Diagnosis With Family and Friends
Talking about a child’s cancer with family and friends can be deeply cathartic for parents one day, and utterly exhausting the next. Asking for and receiving help can be a minefield too. Morgan Livingstone CCLS explores why this is so, and offers tips and tools to reduce stress, improve coping and boost effective practical support.
7 Infant Massage Tips for Improved Summer Sleep
Hot weather and changing holiday routines – summer can be unsettling for babies and young children. Add retinoblastoma to the mix, and achieving good sleep at this time of year can be very hard for affected children and siblings. Morgan Livingstone CCLS explains how infant massage can help, offering specific practical ways to improve sleep during sultry summer months, whether or not a child is receiving cancer care.
The Retinoblastoma Rollercoaster: A Journey Through the Eyes of Rb Moms
Childhood cancer care is often a long and winding road for the entire family, with many successes and setbacks, triumph, despair, and new hope. WE C Hope Director, Lori Baños, creator and moderator of the Facebook group Rb Moms, reflects on the wild rollercoaster ride when a child is diagnosed with eye cancer. With contributions from group members.
Retinoblastoma Family Days: Building Connection, Camaraderie, and Hope
When retinoblastoma changes everything, connection and understanding are vital. Family Days provide a soothing space for families and survivors to gather, share, and heal together. WE C Hope USA President, Marissa Gonzalez, and our blog curator, Abby White, explore how these special events foster community, joy, and hope across the retinoblastoma journey.