One Retinoblastoma World is community, conversation and collaboration for the best lifelong Rb care and support. Previous participants share why the event is so valuable. Rb survivor and WE C Hope CEO, Abby White, considers the many benefits of participating in person compared to attending online, and some ways we can travel “kuleana” to the conference.
https://wechope.org/wp-content/uploads/2017/10/RB-child-aunt-Joanna-perkowska-from-Poland-seeks-advice-from-Dr-Kate-Paton.jpg476640Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-02-05 08:00:202024-04-16 12:05:13Capture the Moment at One Retinoblastoma World 2024 in Hawaii
Despite advances in retinoblastoma treatment, effective care is challenged globally by delayed diagnosis. Early diagnosis saves lives and improves sight-saving options. Rb survivor and WE C Hope CEO, Abby White, explores common reasons for delayed diagnosis, four pillars needed to achieve routine early diagnosis, and how our One Rb World community is united in this goal.
https://wechope.org/wp-content/uploads/2024/01/KTG-Early-Dx-Best-Cure.jpg400526Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-01-22 08:00:122024-06-01 18:27:25Early Diagnosis is the Bedrock of Retinoblastoma Care
Worldwide, many children with eye cancer are diagnosed late. Early diagnosis saves lives, and offers the best opportunity for safe vision saving therapy. Leukocoria awareness advocate, Megan Webber, explores why glow awareness and community eye screening are vital to early detection and referral, and how KnowTheGlow and WE C Hope are helping to ensure children receive timely, effective care.
https://wechope.org/wp-content/uploads/2024/01/KTG-Prevent-Child-Blindness1.jpg10801080Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-01-08 08:00:212024-06-01 15:54:19Illuminating a Child’s Health: The Power of Glow Awareness and Innovation in Detecting Retinoblastoma
We recap a highly successful first conference in Africa for the International Society of Ocular Oncology, and look forward to One Retinoblastoma World 2024 in Honolulu, Hawaii. With One Rb World meeting co-chairs Dr. Jesse L. Berry, Children’s Hospital Los Angeles, USA; Sandra E. Staffieri PhD, Royal Children’s Hospital Melbourne, Australia; and Marissa D. Gonzalez, World Eye Cancer Hope USA.
https://wechope.org/wp-content/uploads/2023/12/Augusta-Martha-Jonita-Mo1.jpg553828Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2023-12-18 08:00:202024-11-22 19:11:32Beyond Borders: Retinoblastoma in Africa and the Pacific
Childhood eye cancer and its lifelong impacts can be a lonely, overwhelming experience. Connecting with others who understand is a healing balm for many. On November 4th, nearly 100 young patients, survivors, family and friends gathered to celebrate and support the amazing Rb community in Southern California. Marissa D. Gonzalez, bilateral Rb survivor and WE C Hope USA President, shares highlights from another delightful Family Day.
https://wechope.org/wp-content/uploads/2023/12/Event-Wideview-scaled.jpeg9432560Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2023-12-04 08:00:412024-11-08 12:35:16Fun in the So Cal Sun: 6th Annual Southern California Retinoblastoma Family Day
Research funding is vital to improve retinoblastoma early diagnosis, life and sight-saving treatment, family support, survivor care, and cancer prevention. But securing the funds for rare cancer research is very tough, often demoralising for researchers and clinician-scientists. Three retinoblastoma researchers share their experience, and two organizations helping to drive Rb research forward invite you to help.
https://wechope.org/wp-content/uploads/2023/11/X-eXpensive.jpg7751090Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2023-11-20 08:00:242023-11-20 18:17:57Investing in Hope: The Quest to Fund Retinoblastoma Research
Understanding how retinoblastoma affects children is critical to improve diagnosis, treatment, support and outcomes for all. Mattan Arazi, M.D and Ido Didi Fabian, M.D., MPH, world-focused ophthalmologists from Sheba Medical Centre, Israel, explore why global data and collaboration are so important in Rb research, and the knowledge, progress, and hope they are building for families and professional teams worldwide.
https://wechope.org/wp-content/uploads/2023/10/ISOO-Africa-2023-edited-scaled.jpg17092560Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2023-11-06 08:00:072023-11-02 21:04:48United Against Retinoblastoma: The Importance of Global Data and Collaboration
Vision loss is a major part of the retinoblastoma experience, but rarely discussed in depth within our community. Sassy Outwater-Wright explores the trauma of vision loss, the experience of living with reduced or no sight, and pathways to living well at every age and stage of sight-loss.
https://wechope.org/wp-content/uploads/2018/10/SWNS_SCHOOL_STICK_01.jpg22913200Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2023-10-23 09:00:102023-10-23 10:38:29Destigmatizing Vision Loss Within the Retinoblastoma Community
The human mind can subtly influence scientific research, with potentially serious consequences for patient care and outcomes. Rb survivor and WE C Hope CEO, Abby White, explores the nuanced world of cognitive and unconscious biases in retinoblastoma research, and strategies that can minimize their impact to ensure objective research and the best care possible for all.
https://wechope.org/wp-content/uploads/2023/08/Medical-Caduceus-Symbol-as-Scales.jpg17342500Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2023-10-09 09:00:082023-11-16 14:04:39Unveiling Shadows: Cognitive and Unconscious Bias in Retinoblastoma Research
Prompt, appropriate medical care is vital for all children with retinoblastoma. A range of treatments are used depending on extent of the cancer, its risk of spread, and the child’s health and wellbeing. Sessions at every One Rb World explore aspects of medical care, and how we can ensure the best possible outcomes for each child. Below, we share sessions from the 2017, 2020, and 2021 meetings.
https://wechope.org/wp-content/uploads/2020/02/Mask-Play1.jpg21862007Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2023-09-25 09:00:072023-09-25 11:21:52Retinoblastoma Treatment at One Rb World
Capture the Moment at One Retinoblastoma World 2024 in Hawaii
One Retinoblastoma World is community, conversation and collaboration for the best lifelong Rb care and support. Previous participants share why the event is so valuable. Rb survivor and WE C Hope CEO, Abby White, considers the many benefits of participating in person compared to attending online, and some ways we can travel “kuleana” to the conference.
Early Diagnosis is the Bedrock of Retinoblastoma Care
Despite advances in retinoblastoma treatment, effective care is challenged globally by delayed diagnosis. Early diagnosis saves lives and improves sight-saving options. Rb survivor and WE C Hope CEO, Abby White, explores common reasons for delayed diagnosis, four pillars needed to achieve routine early diagnosis, and how our One Rb World community is united in this goal.
Illuminating a Child’s Health: The Power of Glow Awareness and Innovation in Detecting Retinoblastoma
Worldwide, many children with eye cancer are diagnosed late. Early diagnosis saves lives, and offers the best opportunity for safe vision saving therapy. Leukocoria awareness advocate, Megan Webber, explores why glow awareness and community eye screening are vital to early detection and referral, and how KnowTheGlow and WE C Hope are helping to ensure children receive timely, effective care.
Beyond Borders: Retinoblastoma in Africa and the Pacific
We recap a highly successful first conference in Africa for the International Society of Ocular Oncology, and look forward to One Retinoblastoma World 2024 in Honolulu, Hawaii. With One Rb World meeting co-chairs Dr. Jesse L. Berry, Children’s Hospital Los Angeles, USA; Sandra E. Staffieri PhD, Royal Children’s Hospital Melbourne, Australia; and Marissa D. Gonzalez, World Eye Cancer Hope USA.
Fun in the So Cal Sun: 6th Annual Southern California Retinoblastoma Family Day
Childhood eye cancer and its lifelong impacts can be a lonely, overwhelming experience. Connecting with others who understand is a healing balm for many. On November 4th, nearly 100 young patients, survivors, family and friends gathered to celebrate and support the amazing Rb community in Southern California. Marissa D. Gonzalez, bilateral Rb survivor and WE C Hope USA President, shares highlights from another delightful Family Day.
Investing in Hope: The Quest to Fund Retinoblastoma Research
Research funding is vital to improve retinoblastoma early diagnosis, life and sight-saving treatment, family support, survivor care, and cancer prevention. But securing the funds for rare cancer research is very tough, often demoralising for researchers and clinician-scientists. Three retinoblastoma researchers share their experience, and two organizations helping to drive Rb research forward invite you to help.
United Against Retinoblastoma: The Importance of Global Data and Collaboration
Understanding how retinoblastoma affects children is critical to improve diagnosis, treatment, support and outcomes for all. Mattan Arazi, M.D and Ido Didi Fabian, M.D., MPH, world-focused ophthalmologists from Sheba Medical Centre, Israel, explore why global data and collaboration are so important in Rb research, and the knowledge, progress, and hope they are building for families and professional teams worldwide.
Destigmatizing Vision Loss Within the Retinoblastoma Community
Vision loss is a major part of the retinoblastoma experience, but rarely discussed in depth within our community. Sassy Outwater-Wright explores the trauma of vision loss, the experience of living with reduced or no sight, and pathways to living well at every age and stage of sight-loss.
Unveiling Shadows: Cognitive and Unconscious Bias in Retinoblastoma Research
The human mind can subtly influence scientific research, with potentially serious consequences for patient care and outcomes. Rb survivor and WE C Hope CEO, Abby White, explores the nuanced world of cognitive and unconscious biases in retinoblastoma research, and strategies that can minimize their impact to ensure objective research and the best care possible for all.
Retinoblastoma Treatment at One Rb World
Prompt, appropriate medical care is vital for all children with retinoblastoma. A range of treatments are used depending on extent of the cancer, its risk of spread, and the child’s health and wellbeing. Sessions at every One Rb World explore aspects of medical care, and how we can ensure the best possible outcomes for each child. Below, we share sessions from the 2017, 2020, and 2021 meetings.