Living and working with retinoblastoma and its far-reaching impacts can be immensely challenging for families, survivors, and professionals. Finding effective ways to manage the stress is vital for our physical and mental health. Margaret Fletcher, Mindfulness instructor at East Coast Mindfulness, and founding member of The Anticancer Lifestyle Program, shares valuable techniques to help reduce stress and promote well-being.
https://wechope.org/wp-content/uploads/2019/05/2.png12602240Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-10-14 08:00:122024-10-09 20:24:37Conquer Stress and Cultivate Calm with These Mindfulness Techniques
Evalynn, Gabriel, Abby and John all developed strabismus (squint or turned eye), one of the most common signs of retinoblastoma. This can also occur in healthy eyes or affect multiple family members without eye cancer. Sandra Staffieri, Retinoblastoma Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explains, and answers the key question – when should parents and doctors be concerned?
https://wechope.org/wp-content/uploads/2024/09/Strabismus-Challenge.jpg6301050Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-09-30 08:00:432024-09-16 18:19:41The Life-Saving Power of a Squint: When to Investigate a Child’s Turned Eye
Familial retinoblastoma affects more than one person in a family, and individuals with a heritable RB1 gene mutation have increased cancer risk throughout life. Finding cancer early is vital for the best treatment and outcomes. Revisiting blogs from ocular oncologist Alison Skalet M.D. PhD, and WE C Hope CEO / Rb Survivor, Abby White, we explore screening for high-risk individuals at all stages of life.
https://wechope.org/wp-content/uploads/2024/03/Gold-Ribbon-Tree-Landscape-1.jpg10241792Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-09-16 08:00:542024-11-26 12:19:29Screening for Familial Retinoblastoma and Related Second Primary Cancers
Many parents and survivors report signs and symptoms of retinoblastoma and related second cancers to primary care providers. Prompt referral is vital for timely diagnosis and optimal treatment. WE C Hope CEO Abby White explores who needs referral and when, and the key elements of an effective referral process – for children with possible eye cancer, and survivors throughout life.
https://wechope.org/wp-content/uploads/2022/10/Compass-scaled.jpg15572560Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-09-02 08:00:532024-09-01 23:54:14Referral for Possible Retinoblastoma or Second Primary Cancer
When Retinoblastoma Care Co-ordinator Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of Rb centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, One Rb World, the key destination on her trip, was not even on her itinerary. 12 years later, the impact of that trip continues…
https://wechope.org/wp-content/uploads/2018/02/Great-Adventures.jpg10801920Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-08-19 08:00:082024-09-02 00:08:11One Retinoblastoma World: A New Realm of Discovery
Primary care providers are pivotal in the timely diagnosis of retinoblastoma and related second cancers. They are usually the first contact for parents and survivors concerned about signs and symptoms. WE C Hope CEO Abby White explores their key role, the challenges they face in recognizing signs and securing a swift referral, and the need for education targeting primary care providers.
https://wechope.org/wp-content/uploads/2024/08/Fundal-Reflex-Exam-1.jpg15002500Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-08-05 08:00:462024-07-31 14:24:37Early Detection Saves Lives: Primary Care, Retinoblastoma, and Second Cancers
Though small and far-flung, our global retinoblastoma family stands strong together. Members of WE C Hope USA’s Board of Directors and past One Rb World participants explain how this conference unites us and strengthens ohana. In trial, grief, hope, and triumph, we share and learn from our collective experience, support one another, and strive to care for all.
https://wechope.org/wp-content/uploads/2020/07/Group-Video-Capture2.jpg490885Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-07-22 02:00:292024-07-30 19:34:07Ohana: The Beating Heart of One Retinoblastoma World 2024
Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for retinoblastoma early detection, why primary care providers should take them seriously, and how they impacted the diagnosis journey of four children.
https://wechope.org/wp-content/uploads/2024/05/KTG-What-If-Kenya-English.png10801080Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-07-08 08:00:372024-06-13 23:10:25Gut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye Cancer Early
Early diagnosis of retinoblastoma saves children’s lives, and offers the best opportunity for safe vision saving therapy. But worldwide, many children are diagnosed late. KnowTheGlow founder, Megan Webber, and WE C Hope USA President, Marissa D. Gonzalez discuss how our early detection partnership evolved, and update on the progress we’re making for children in Africa and Asia.
https://wechope.org/wp-content/uploads/2024/06/KTG-A-Photo-Can-Kenya-English.png10801080Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-06-24 05:00:532024-11-22 19:14:05Pearls of Light: The Pathway to Retinoblastoma Early Detection
Laulima signifies the power of cooperation, teamwork and collective effort. This Hawaiian concept of many hands striving together drives the One Rb World conference, taking place in Honolulu this October. Members of our 2024 conference team explain how laulima inspires their work for this global community, united to advance retinoblastoma care for all.
https://wechope.org/wp-content/uploads/2020/05/Group-Pic-Tuesday1.jpg400640Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2024-06-10 07:30:152024-06-28 11:41:04Laulima: Many Hands, One Retinoblastoma World
Conquer Stress and Cultivate Calm with These Mindfulness Techniques
Living and working with retinoblastoma and its far-reaching impacts can be immensely challenging for families, survivors, and professionals. Finding effective ways to manage the stress is vital for our physical and mental health. Margaret Fletcher, Mindfulness instructor at East Coast Mindfulness, and founding member of The Anticancer Lifestyle Program, shares valuable techniques to help reduce stress and promote well-being.
The Life-Saving Power of a Squint: When to Investigate a Child’s Turned Eye
Evalynn, Gabriel, Abby and John all developed strabismus (squint or turned eye), one of the most common signs of retinoblastoma. This can also occur in healthy eyes or affect multiple family members without eye cancer. Sandra Staffieri, Retinoblastoma Care Co-ordinator at the Royal Children’s Hospital, Melbourne, explains, and answers the key question – when should parents and doctors be concerned?
Screening for Familial Retinoblastoma and Related Second Primary Cancers
Familial retinoblastoma affects more than one person in a family, and individuals with a heritable RB1 gene mutation have increased cancer risk throughout life. Finding cancer early is vital for the best treatment and outcomes. Revisiting blogs from ocular oncologist Alison Skalet M.D. PhD, and WE C Hope CEO / Rb Survivor, Abby White, we explore screening for high-risk individuals at all stages of life.
Referral for Possible Retinoblastoma or Second Primary Cancer
Many parents and survivors report signs and symptoms of retinoblastoma and related second cancers to primary care providers. Prompt referral is vital for timely diagnosis and optimal treatment. WE C Hope CEO Abby White explores who needs referral and when, and the key elements of an effective referral process – for children with possible eye cancer, and survivors throughout life.
One Retinoblastoma World: A New Realm of Discovery
When Retinoblastoma Care Co-ordinator Sandra Staffieri left Australia in August 2012 for a conference in Italy and a tour of Rb centres in North America, she had no idea how radically the journey would change her life and care at the Royal Children’s Hospital, Melbourne. Yet as she departed, One Rb World, the key destination on her trip, was not even on her itinerary. 12 years later, the impact of that trip continues…
Early Detection Saves Lives: Primary Care, Retinoblastoma, and Second Cancers
Primary care providers are pivotal in the timely diagnosis of retinoblastoma and related second cancers. They are usually the first contact for parents and survivors concerned about signs and symptoms. WE C Hope CEO Abby White explores their key role, the challenges they face in recognizing signs and securing a swift referral, and the need for education targeting primary care providers.
Ohana: The Beating Heart of One Retinoblastoma World 2024
Though small and far-flung, our global retinoblastoma family stands strong together. Members of WE C Hope USA’s Board of Directors and past One Rb World participants explain how this conference unites us and strengthens ohana. In trial, grief, hope, and triumph, we share and learn from our collective experience, support one another, and strive to care for all.
Gut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye Cancer Early
Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for retinoblastoma early detection, why primary care providers should take them seriously, and how they impacted the diagnosis journey of four children.
Pearls of Light: The Pathway to Retinoblastoma Early Detection
Early diagnosis of retinoblastoma saves children’s lives, and offers the best opportunity for safe vision saving therapy. But worldwide, many children are diagnosed late. KnowTheGlow founder, Megan Webber, and WE C Hope USA President, Marissa D. Gonzalez discuss how our early detection partnership evolved, and update on the progress we’re making for children in Africa and Asia.
Laulima: Many Hands, One Retinoblastoma World
Laulima signifies the power of cooperation, teamwork and collective effort. This Hawaiian concept of many hands striving together drives the One Rb World conference, taking place in Honolulu this October. Members of our 2024 conference team explain how laulima inspires their work for this global community, united to advance retinoblastoma care for all.