A young boy practices giving eye drops to a medical play puppet.

10 Ways to Support Your Child Through EUA for Retinoblastoma

Examinations Under Anaesthetic (EUA) are an essential part of retinoblastoma diagnosis, treatment, and surveillance follow up care. Combining content from our Child Life Resource, Morgan Livingstone CCLS CIMI MA reviews 10 ways parents can support children of all ages through the experience to benefit everyone’s wellbeing.

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A child life specialist uses a unicorn horn-shaped bubble generator to distract a young girl and her father. She wears a brightly decorated black surgical cap, adorned with a flowery pink unicorn horn tiara, as well as a face mask, glasses, and surgical gloves. The father also wears a face mask and looks attentively at both the child life specialist and his daughter while securely holding the little girl. Dressed in shades of pink and surrounded by iridescent bubbles, she reaches out toward them with curious delight. In the background, a colourful mural features a smiling face, abstract shapes, and natural elements.

Distraction in Action: How to Build Kids’ Confidence and Comfort in Medical Care

Medical care can be overwhelming for children and their family, causing fear and distress. Without support, these experiences can escalate into medical trauma. WE C Hope CEO, Abby White, and Child Life Specialist, Morgan Livingstone, explore how simple distraction tools reduce anxiety, increase cooperation, and empower both children and caregivers to be calm, confident participants, even in complex medical care.

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Rati puts on surgical gloves while her mum, Salome, and child life specialist Morgan look on. Both Rati and Morgan are wearing surgical masks. A medical play doll and various medical equipment are laid out beside Rati.

WE C Hope and Child Life: Bridging Gaps, Easing Trauma, Building Hope

Child life helps families cope with retinoblastoma care, reducing trauma, and building hope. Yet access remains limited worldwide. March is Child Life Month and the birthday of our beloved Rati, whose brief life inspired World Eye Cancer Hope. From her care in Canada to Kenya, One Rb World and beyond, WE C Hope CEO, Abby White, explores how child life became central to our mission.

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A bald toddler sits on her mother’s lap during a port access procedure. Her back rests against her mother’s chest, and her head is turned up and back towards her mother, who is leaning down in conversation. Both mother and child are white. The nurse accessing the port is seen from behind and has fair hair.

Comfort Positions: How to Help Children Feel Safe and Supported During Medical Procedures

Medical procedures can be stressful for children, often leading to fear, resistance, and lasting anxiety. Comfort Positions offer a simple and powerful way to ease distress, ensuring a safer, more supportive experience for children, caregivers, and medical teams. WE C Hope CEO, Abby White, and Child Life Specialist, Morgan Livingstone, explore how comfort positioning transforms medical care, fostering trust, cooperation, and emotional well-being.

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KnowTheGlow awareness poster. Text reads “See it once, be alert – see it twice, be active”. Know the glow logo is in the bottom left corner. On the right, a child smiles at the camera and a white glow is visible in their right eye.

Breaking Barriers to Early Diagnosis: Revisit a Year of Action

Early Diagnosis is the foundation of effective retinoblastoma and second cancer care. Yet, many families and survivors around the world face complex, delayed diagnostic journeys. WE C Hope CEO, Abby White, reflects on the 2024 #RbEarlyDiagnosis campaign, exploring key themes, family and medical perspectives, global collaborations, and the progress our One Rb World community is making toward faster access to life-saving care.

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A cream deconrated stone lays on a bed of grey stones. The word “Breathe” is written across the stone in flowing black script, accented with white dots. The portion of stone below the word is decorated with waves and water droplets in light, mid and dark blue, and mid green. They are all outlined in a series of tiny white dots.

Breathing for Wellness: Why Breath Matters, and 9 Ways to Breathe Out Stress

When we are anxious or angry, we tense up and hold our breath, or breathe fast and shallow, further increasing stress. Slow, deep breathing almost instantly diffuses tension, helping us feel calm, clear-headed and in control. Abby White explores why our bodies react this way, and how we can use our breath to restore calm fast.

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A young boy is wrapped up in a hug from an Elmo character.

A Child With Cancer Is Much More Than A “Case”: Why Words Matter in Retinoblastoma Care and Awareness

Can the language we use impact patient well-being, conduct of research and care? WE C Hope CEO and retinoblastoma survivor, Abby White, explores the effect of scientists, doctors and reporters referring to retinoblastoma patients as “cases” rather than children, and how our One Rb World community helps create a foundation of care that nurtures complete well-being.

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7 children co-create a group board game, supported by an adult. One of the children is adding to the board game with a marker

Child Life for All Ages: Empowering Children with Cancer to Thrive

Retinoblastoma is a challenging journey for children and their families, often deeply affecting emotional and physical well-being long after treatment ends. Tailored support enhances quality of life during cancer care and beyond. Rb survivor and WE C Hope founder, Abby White; and Child Life Specialist, Morgan Livingstone, explore how child life specialists empower children of all ages and their families to cope, heal, and thrive.

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Two young girls and a boy sit smiling in front of a Christmas tree, all wearing pyjamas. One of the girls holds a baby girl who has a white glow in her left eye.

Angels and Zebras: How Life-Saving Holiday Pics Reveal Children’s Rare Eye Cancer

Happy Holidays from World Eye Cancer Hope! We love a white Christmas and the season’s festive glow – angels, fairy lights, iced cakes, candles, and snow… But we do not like a white glow in children’s eyes. Rb Survivor and WE C Hope CEO Abby White explains how festive Holiday photos could save a child’s life, and even their sight.

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A table is covered with a large sheet of white paper featuring hand-drawn, decorative letters spelling out the words: One Retinoblastoma World 2024. The words are outlined in various colours and patterns, and the letters are intricately designed with stripes, flowers, polka dots, and googly eyes. On the table, a container holds colorful markers; sheets of stickers featuring tropical and fun designs, such as flowers, palm trees, animals, and beach items; large, playful googly eyes; hand-drawn outlines of children’s hands.

One Rb World 2024 Says “Mahalo” to the Retinoblastoma Community – Day Three | Page 4

The final moments of the 7th One Rb World Conference in Honolulu, Hawaii, were dedicated to patients, families, and survivors, showcasing how empowering them can transform their individual experience and collective progress. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, tells of the inspiring child life programming, and groundbreaking patient engaged-research building bridges of hope and healing for our retinoblastoma community worldwide.

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