Entries by Abby

Gut Feelings Matter: How Parent Instinct and Intuition Detect Childhood Eye Cancer Early

Strong parent instinct and intuition often lead to a child’s eye cancer diagnosis. Rb Survivor and WE C Hope CEO, Abby White explores what they are and how they differ, why they are so important for retinoblastoma early detection, why primary care providers should take them seriously, and how they impacted the diagnosis journey of four children.

Pearls of Light: The Pathway to Retinoblastoma Early Detection

Early diagnosis of retinoblastoma saves children’s lives, and offers the best opportunity for safe vision saving therapy. But worldwide, many children are diagnosed late. KnowTheGlow founder, Megan Webber, and WE C Hope USA President, Marissa D. Gonzalez discuss how our early detection partnership evolved, and update on the progress we’re making for children in Africa and Asia.

Laulima: Many Hands, One Retinoblastoma World

Laulima signifies the power of cooperation, teamwork and collective effort.  This Hawaiian concept of many hands striving together drives the One Rb World conference, taking place in Honolulu this October.  Members of our 2024 conference team explain how laulima inspires their work for this global community, united to advance retinoblastoma care for all.

Between Shadow and Light: Young Lives in Jeopardy from Retinoblastoma

Worldwide, children and their families grapple with life-threatening eye cancer due to delayed diagnosis and care. Unchecked, retinoblastoma has far-reaching consequences. Through two family stories, WE C Hope CEO Abby White explores the impacts of low awareness, slow referral, and delayed care, and the life-saving, sight-saving opportunities they reveal.

A Glint or a Squint Could Be Your Hint: Knowledge is Key to Retinoblastoma Early Diagnosis

Critical clues to a child’s eye cancer hide in plain sight. Parent and physician knowledge, and ability to spot these silent signs are vital to early detection, swift referral, and prompt diagnosis. Meet five children from around the world whose parents’ curiosity, nagging concern, and action were pivotal to their diagnosis and life-saving, sight-saving care.

Mile High Moments at the Denver Retinoblastoma Family Weekend

Fifty retinoblastoma patients, survivors, and their family members joined World Eye Cancer Hope USA in February for three days of connection and fun in Colorado’s capital. Marissa D. Gonzalez, President and Founding Board Member or WE C Hope USA, shares highlights from the weekend, and why these gatherings are so important to our community.

Solidarity, Strength, and Synergy: The Gold Ribbon and the Global Fight Against Childhood Cancer

The gold ribbon is the unifying symbol of childhood cancer. Worldwide, it celebrates the victory of each life saved, honours the memory of every precious child lost, and shines with hope of cure for all children. WE C Hope CEO, Abby White, explains four key reasons we support the gold ribbon campaign, and shares new gold ribbon merch designs you can buy to support our retinoblastoma community.

Beyond Retinoblastoma: Celebrating Cancer Survivorship; Advocating Lifelong Care

At seventeen months old, Marissa Gonzalez was diagnosed with bilateral retinoblastoma – the first turning point in her lifelong journey with this cancer syndrome.  Today, as President of WE C Hope USA, she celebrates 32 years free from eye cancer, and shares the latest chapter of her cancer survivorship story, with two appeals to all in our community.

The Arclight and Fundal Reflex Test: Shining the Light on Retinoblastoma

Screening children’s eyes with the Fundal “Red” Reflex is key to early detection of retinoblastoma, but until recently, it was difficult to deliver in many countries. Dr Andrew Blaikie, ophthalmologist and clinical lead for the Arclight Project at the University of St Andrews, describes the importance of this simple exam, and how the Arclight improves eye health access and outcomes for children with eye cancer around the world.