Entries by Abby

Child Life in Kenya: The Sally Test Child Life Program

Children with cancer experience invasive procedures and stressful events throughout their medical care that can impact their ability to cope, inhibit their development and negatively affect their health and well-being throughout life. Child life supports effective healthcare and reduces trauma. Morgan Livingstone CCLS describes how WE C Hope is bringing hope through Child Life to children and their families in Africa.

Social Media Support: 10 Reasons Why Exchanging Medical Advice can be Unhelpful, and What to do Instead

When someone asks for support on social media, instincts drives us to offer hopeful solutions. But without full knowledge and understanding, we may cause more harm than help. Reviewing real interactions and their outcomes, WE C Hope CEO, Abby White, shares key points to consider when discussing retinoblastoma, and how to respond well.

Social Media Support: 7 Ways to Respond Effectively, and Why Our Responses Matter

How we respond to one another in retinoblastoma support forums, and the information we share, can significantly impact patient care and outcomes. Abby White shares 7 ways we can respond positively to any social media request for help, to improve communication, support, and best care for the child/survivor and family.

Online Learning Challenges and How to Help Kids with Vision-Loss Thrive

Children with vision loss from retinoblastoma need accommodations and extra support to access online learning and thrive in the virtual school world. Rb survivor and Orientation and Mobility Specialist, Jessica Givens, explores key challenges of online education, and the best ways to help children reach their potential in the virtual classroom.

Breathing for Wellness: Why Breath Matters, and 8 Ways to Breathe Out Stress

When we are anxious or angry, we tense up and hold our breath, or breathe fast and shallow, further increasing stress. Slow, deep breathing almost instantly diffuses tension, helping us feel calm, clear-headed and in control. Abby White explores why our bodies react this way, and how we can use our breath to restore calm fast.

Alphabet of Hope: Rewriting the Future of Retinoblastoma Care

After a year of publishing the #FamilyInSight Alphabet of Hope, we bring you the complete collection of 2020 Entries. This is the third #AlphabetOfHope. WE C Hope CEO, Abby White looks back at the alphabet’s genesis, and the insight, wisdom and motivation this literary project brings to the retinoblastoma community.

Happy Holidays from World Eye Cancer Hope!

2020 has been eventful and challenging for the whole world.  Throughout, WE C Hope has continued to serve, unite and advance our global retinoblastoma community. WE C Hope USA President and retinoblastoma survivor, Marissa Gonzalez, reflects on the year’s highlights with thanks, and shares some plans for the coming year.

Celebrating the Holidays with a Child in Treatment

The end of year Holidays are more important than ever when a child has cancer, but they can also bring extra burdens on top of intensive treatment. Child Life Specialist, Morgan Livingstone, offers advice on how to create a magical Holiday for the whole family when a child is in treatment, with self-care at the heart of thoughtful planning.

One Retinoblastoma World 2020: Inspiring Global Support, Research and Action.

In October, a diverse community of survivors, families and medical professionals came together at One Retinoblastoma World for two days of inspiring panels, research and calls to action.  WE C Hope USA President Marissa D. Gonzalez shares a recap of the fifth global conference, and her vision for next year’s event in Hawaii.

Cyberbullying: What Is It? How Can We Handle It and Reduce the Risk?

Cyberbullying is becoming increasingly common, as we spend more time online, beginning at younger ages. Child Life intern, Shane Smith, explores the defining features of cyberbullies, what we can do to limit the risk of unwanted attention and protect our security online, and how we can handle cyberbullying and support affected children.