Do you know the difference between a biopsy and pathology, or an RB1 gene deletion and Chromosome 13q deletion? Do you know how a retinoma becomes retinoblastoma or when remission becomes cure? In Part 2 of a mini-series, WE C Hope CEO Abby White explains these and other terms, and why using them correctly is important.
https://wechope.org/wp-content/uploads/2018/12/Anaesthetic-Mask-Play.jpg567712Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2018-12-08 22:09:472020-04-27 10:27:5910 Commonly Confused Retinoblastoma Terms, What They Mean and Why Getting Them Right Matters.
Parents and survivors have valuable lived experience that can shape retinoblastoma research to improve health outcomes. Kaitlyn Flegg reviews progress of the innovative Canadian Retinoblastoma Research Advisory Board, where parent and survivor priorities are setting the research agenda.
https://wechope.org/wp-content/uploads/2018/10/Family-Day.jpg500624Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2018-11-11 13:57:442020-04-27 10:32:59Shaping Retinoblastoma Research Development Through Patient Engagement
Intra-arterial chemotherapy (IAC) offers potential to save eyes and sight in children with retinoblastoma, when life is not at risk. Through the FAQ of this treatment, Sameh Soliman, MD reviews its goals, indications for use, benefits, risks and limitations, and offers resources for further reading.
Progress of eye-saving treatments for retinoblastoma is very exciting, but an increasing number of curable children are developing metastatic relapse and dying after eye-salvage therapy. With parent experiences woven throughout, Retinoblastoma survivor Abby White, asks why this is happening and what can be done to prevent it.
https://wechope.org/wp-content/uploads/2018/09/Damian-2.jpg960720Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2018-09-15 19:47:592020-04-27 10:36:50Always Life Before Eye – So Why Are Curable Children Dying?
July 11, World Population Day, focuses attention on the urgency and importance of population issues. Helen Dimaras Ph.D considers the effect of our expanding global population on the expected numbers of children who will develop eye cancer each year, and the provision of effective care to meet their needs.
https://wechope.org/wp-content/uploads/2018/06/DSCN2286.jpg627976Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2018-07-07 21:18:342020-04-27 10:41:09Challenging the Global Retinoblastoma Burden on World Population Day
The body’s sensitive biological clock regulates sleep, which is vital to our physical and mental health. Dr. Iona Alexander explores how some effects of retinoblastoma treatment may disrupt this highly tuned system, and invites survivors to help researchers understand the relationship between these effects and sleep.
On Saturday 12 May, International Nurses Day celebrates the incredible life-saving, life-changing work of nurses around the world. Janine Patterson shares the uncommon experience, benefit and burden of being a nurse when your child is diagnosed with cancer, and important things she has learned along the way.
https://wechope.org/wp-content/uploads/2018/05/Creighton.jpg32642448Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2018-05-05 18:00:322020-04-27 10:47:47Life as a Registered Mom
Brenda Gallie, global leader in retinoblastoma clinical care, research and innovation, discusses an exciting technology promising to improve care during treatment and beyond. DePICTRB supports collaboration among the child’s entire circle of care, gives parents open access to their child’s record, and empowers clinical research.
https://wechope.org/wp-content/uploads/2018/02/DePict2.jpg8061433Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2018-02-25 00:00:052023-11-21 21:43:34DePICT the Cancer Care Journey: Overcome Rarity Through Collaborative Research
What does it mean to be told your 12 week old baby has a rare eye cancer? Jim Valavanis shares his experience of first-time parenting, nearly five years of childhood cancer treatment, and Life Through Sam’s Eyes – the hope-filled book that emerged from his healing journey.
https://wechope.org/wp-content/uploads/2018/01/Valavanis-Family1.jpg24483264Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2018-01-27 21:17:272023-11-21 21:42:41Life Through Sam’s Eyes: How Our Blind Son Helped Us See
New beginnings, hopes, dreams, possibilities, resolutions. January is an ideal time to explore how we can make our daily lives happier. Our volunteer CEO, Abby White, shares New Year greetings, tips for a happier 2018, and a personal message of change as the New Year begins.
https://wechope.org/wp-content/uploads/2017/12/Happiness1.jpg5381022Abby Whitehttps://wechope.org/wp-content/uploads/2015/08/WeCH-Logo-web2.jpgAbby White2017-12-31 09:00:022023-01-07 19:34:5712 Ways to be Happier in the New Year
10 Commonly Confused Retinoblastoma Terms, What They Mean and Why Getting Them Right Matters.
Do you know the difference between a biopsy and pathology, or an RB1 gene deletion and Chromosome 13q deletion? Do you know how a retinoma becomes retinoblastoma or when remission becomes cure? In Part 2 of a mini-series, WE C Hope CEO Abby White explains these and other terms, and why using them correctly is important.
Shaping Retinoblastoma Research Development Through Patient Engagement
Parents and survivors have valuable lived experience that can shape retinoblastoma research to improve health outcomes. Kaitlyn Flegg reviews progress of the innovative Canadian Retinoblastoma Research Advisory Board, where parent and survivor priorities are setting the research agenda.
Intra-Arterial Chemotherapy (IAC) for Retinoblastoma Made Simple
Intra-arterial chemotherapy (IAC) offers potential to save eyes and sight in children with retinoblastoma, when life is not at risk. Through the FAQ of this treatment, Sameh Soliman, MD reviews its goals, indications for use, benefits, risks and limitations, and offers resources for further reading.
Always Life Before Eye – So Why Are Curable Children Dying?
Progress of eye-saving treatments for retinoblastoma is very exciting, but an increasing number of curable children are developing metastatic relapse and dying after eye-salvage therapy. With parent experiences woven throughout, Retinoblastoma survivor Abby White, asks why this is happening and what can be done to prevent it.
Challenging the Global Retinoblastoma Burden on World Population Day
July 11, World Population Day, focuses attention on the urgency and importance of population issues. Helen Dimaras Ph.D considers the effect of our expanding global population on the expected numbers of children who will develop eye cancer each year, and the provision of effective care to meet their needs.
Sleep, Photosensitivity and Retinoblastoma
The body’s sensitive biological clock regulates sleep, which is vital to our physical and mental health. Dr. Iona Alexander explores how some effects of retinoblastoma treatment may disrupt this highly tuned system, and invites survivors to help researchers understand the relationship between these effects and sleep.
Life as a Registered Mom
On Saturday 12 May, International Nurses Day celebrates the incredible life-saving, life-changing work of nurses around the world. Janine Patterson shares the uncommon experience, benefit and burden of being a nurse when your child is diagnosed with cancer, and important things she has learned along the way.
DePICT the Cancer Care Journey: Overcome Rarity Through Collaborative Research
Brenda Gallie, global leader in retinoblastoma clinical care, research and innovation, discusses an exciting technology promising to improve care during treatment and beyond. DePICTRB supports collaboration among the child’s entire circle of care, gives parents open access to their child’s record, and empowers clinical research.
Life Through Sam’s Eyes: How Our Blind Son Helped Us See
What does it mean to be told your 12 week old baby has a rare eye cancer? Jim Valavanis shares his experience of first-time parenting, nearly five years of childhood cancer treatment, and Life Through Sam’s Eyes – the hope-filled book that emerged from his healing journey.
12 Ways to be Happier in the New Year
New beginnings, hopes, dreams, possibilities, resolutions. January is an ideal time to explore how we can make our daily lives happier. Our volunteer CEO, Abby White, shares New Year greetings, tips for a happier 2018, and a personal message of change as the New Year begins.