Do you know the difference between lazy eye and squint, or an ocular oncologist and a paediatric oncologist? Do you know when extraocular Rb becomes metastatic, or why trilateral Rb is neither of these? In Part 1 of a mini-series, WE C Hope CEO Abby White explains these and other terms, and why using them correctly is important.
Why should we be concerned about childhood cancer awareness when it accounts for only 1-3% of all cancers? Surely its rarity means the impact on society and childhood deaths is low? Not True! Bilateral Rb survivor and WE C Hope CEO, Abby White, explores the realities of childhood cancer, sharing personal experience, and insights from parents and fellow survivors,
Talking about a child’s cancer with family and friends can be deeply cathartic for parents one day, and utterly exhausting the next. Asking for and receiving help can be a minefield too. Morgan Livingstone CCLS explores why this is so, and offers tips and tools to reduce stress, improve coping and boost effective practical support.
Childhood cancer care is often a long and winding road for the entire family, with many successes and setbacks, triumph, despair, and new hope. WE C Hope Director, Lori Baños, creator and moderator of the Facebook group Rb Moms, reflects on the wild rollercoaster ride when a child is diagnosed with eye cancer. With contributions from group members.
Retinoblastoma genetics are complex. Their implications for medical care can be confusing for families and professionals alike. For World DNA Day, Rb survivor and WE C Hope co-founder / CEO, Abby White, considers the central importance of DNA and genetic knowledge in caring for the child and family, during treatment and throughout life.
Child life helps families cope with retinoblastoma care, reducing trauma, and building hope. Yet access remains limited worldwide. March is Child Life Month and the birthday of our beloved Rati, whose brief life inspired World Eye Cancer Hope. From her care in Canada to Kenya, One Rb World and beyond, WE C Hope CEO, Abby White, explores how child life became central to our mission.
Early Diagnosis is the foundation of effective retinoblastoma and second cancer care. Yet, many families and survivors around the world face complex, delayed diagnostic journeys. WE C Hope CEO, Abby White, reflects on the 2024 #RbEarlyDiagnosis campaign, exploring key themes, family and medical perspectives, global collaborations, and the progress our One Rb World community is making toward faster access to life-saving care.
Can the language we use impact patient well-being, conduct of research and care? WE C Hope CEO and retinoblastoma survivor, Abby White, explores the effect of scientists, doctors and reporters referring to retinoblastoma patients as “cases” rather than children, and how our One Rb World community helps create a foundation of care that nurtures complete well-being.
Happy Holidays from World Eye Cancer Hope! We love a white Christmas and the season’s festive glow – angels, fairy lights, iced cakes, candles, and snow… But we do not like a white glow in children’s eyes. Rb Survivor and WE C Hope CEO Abby White explains how festive Holiday photos could save a child’s life, and even their sight.
The final moments of the 7th One Rb World Conference in Honolulu, Hawaii, were dedicated to patients, families, and survivors, showcasing how empowering them can transform their individual experience and collective progress. Marissa D. Gonzalez, President of World Eye Cancer Hope USA, and Conference Event Chair, tells of the inspiring child life programming, and groundbreaking patient engaged-research building bridges of hope and healing for our retinoblastoma community worldwide.
