Recently, a number of people have asked why we promote the childhood cancer gold ribbon and not a ribbon uniquely for retinoblastoma. This is a good question – here are our three key reasons…
Children with retinoblastoma are much more than a medical specimen. To achieve complete cure, we must consider them as a whole person, not just an eye or a body to be treated. A single word can completely change our focus.
People often ask me incredulously “why would parents refuse eye removed surgery if it’s the only way to save their child’s life?” This is a very important question. Understanding the complex answers helps us care for families to ensure children have the best chance of cure.
Two children. The same affliction. Drastically different outcomes. Yet each story represents the most common reality for children with retinoblastoma in these respective parts of the world.
The challenges surrounding eye removal stigma are complex, but our passion to overcome them is stronger. I feel honoured to have a special eye and to be able to use it to help spread the message and save lives.