July 11, World Population Day, focuses attention on the urgency and importance of population issues. Helen Dimaras Ph.D considers the effect of our expanding global population on the expected numbers of children who will develop eye cancer each year, and the provision of effective care to meet their needs.
The body’s sensitive biological clock regulates sleep, which is vital to our physical and mental health. Dr. Iona Alexander explores how some effects of retinoblastoma treatment may disrupt this highly tuned system, and invites survivors to help researchers understand the relationship between these effects and sleep.
Brenda Gallie, global leader in retinoblastoma clinical care, research and innovation, discusses an exciting technology promising to improve care during treatment and beyond. DePICTRB supports collaboration among the child’s entire circle of care, gives parents open access to their child’s record, and empowers clinical research.
Focused on best care for all, One Rb World 2017 included the first ever US national Family & Survivor Day. The collaborative program covered awareness, treatment, parent advocacy, life-long care, research, child life and the pathway to progress for our global community.
The Canadian Retinoblastoma Research Advisory Board is working with patient families to guide future research priorities. Engaging parents and survivors can lead to improved health outcomes. Read on and sign up today.
Expert retinoblastoma pathology identifies cancer spread to outer layers of the eye or the optic nerve, guiding post-operative care. WE C Hope CEO, Abby White explains how accurate, timely pathology is key to long-term survival when a child has advanced cancer, and what may happen when pathology is unreliable, or not available at all.
Being the parent of a child with retinoblastoma, or living with the effects of this cancer, can be frustrating. We look at a few challenges and ways we can help the medical community advance care.
Have you ever wondered what happens in a child’s eye during retinoblastoma treatment? We explore four of the most common eye-saving treatments here. Below each, you will find a link to further information that includes advantages, disadvantages, side effects and questions to ask the doctor.
Retinoblastoma is staged to help doctors describe the degree of cancer in a child’s body, define potential for cure / eye salvage, determine best treatments, and compare impact of different therapies. Each eye is staged separately to define potential for safely saving the eye and vision.
Retinoblastoma specialists agree that early diagnosis of eye cancer is a child’s best hope of survival, retaining some vision or their eye. Yet around the world, thousands of children die, and more than half of children who are cured lose at least one eye. We consider the potential and limitations of six solutions to improve early diagnosis.
