On Rare Diseases Day, we explore 10 complex, controversial topics in Rb care. While we continue to avoid them, children, families and survivors suffer.
Frozen composer Christophe Beck and 1M+ children making more than 900,000 videos, have created the childhood cancer awareness song We Are One. Find out more and watch the music video.
February 4 is World Cancer Day. February 15 is International Childhood Cancer Day. Children and adults worldwide can two creative campaigns, raising awareness and showing support for those fighting cancer today. Kids can join the chorus of a new single to be released on Feb 15. Anyone can join the WCD Talking Hands campaign.
Self-care is vital for all who are impacted by childhood cancer – parents, survivors of all ages and the medical professionals who care for us. Give yourself permission to take time out for you every day! Here are some self-CARE tips to help create inner calm that will dramatically improve your quality of life and the lives of those you care for.
“I have retinoblastoma”. Medical professionals would correct me – “you had retinoblastoma – now you are cancer-free”. But am I really free from cancer?
In many countries. Driving with vision in only one eye is legal. However, there are some Important things to bare in mind when driving with monocular vision.
As a survivor of bilateral retinoblastoma, I am challenged to be supportive of dear friends facing their own second cancer journey, without being swamped by fear for my own future. I imagine this is a similar balancing act for parents whose children are in treatment now, as social media increasingly brings us into contact with families struggling to access appropriate care for their child.