One Rb World 2020 Banner. Background shows the Ottawa skyline at sunset. Above the One Rb World logo, text reads: October 3-4, 2020, Ottawa, Canada (struckthrough text) | Virtual Conference. At the bottom of the image, text reads “Hosted By” followed by four logos of World Eye Cancer Hope, the Canadian Rb Society, Canadian Rb Research Advisory Board, and International Rb Consortium.

One Retinoblastoma World 2020: Inspiring Global Support, Research and Action.

In October, a diverse community of survivors, families and medical professionals came together at One Retinoblastoma World for two days of inspiring panels, research and calls to action.  WE C Hope USA President Marissa D. Gonzalez shares a recap of the fifth global conference, and her vision for next year’s event in Hawaii.

An abstract image of a child sitting on the floor, head on knees. The child sits in a shaft of blue light emanating from their laptop. Outlined hands emerge from the computer screen, pointing at the child.

Cyberbullying: What Is It? How Can We Handle It and Reduce the Risk?

Cyberbullying is becoming increasingly common, as we spend more time online, beginning at younger ages. Child Life intern, Shane Smith, explores the defining features of cyberbullies, what we can do to limit the risk of unwanted attention and protect our security online, and how we can handle cyberbullying and support affected children.

A young lady reclines in a hospital chair, holding a cute grey elephant with big eyes, while a nurse takes a blood sample from her arm.

How to Communicate with People Who are Blind or Vision Impaired – Part 3: Medical Care and Support

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 3 focuses on medical care and support.

A man wearing dark glasses walks with a woman along a road, guided by his cane and his hand at her elbow.

How to Communicate with People Who are Blind or Vision Impaired – Part 2: Assistance, Access and Technology

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals working with people who are blind or vision impaired, Part 2 focuses on assistance, access and technology.

Two small group discussions are taking place around separate tables.

How to Communicate with People Who are Blind or Vision Impaired – Part 1: General Meeting and Interaction

Most children with retinoblastoma and survivors have some degree of sight loss, and many experience awkward healthcare interactions as a result. This 3-part series shares survivor and parent tips for medical professionals caring for and working with people who are blind or vision impaired. Part 1 focuses on general meeting and interaction.

A young smiling girl holds a certificate that states "First Day of Pre-School 2018-2019".

How to Support Learning For Children With Vision Loss

Most children with retinoblastoma experience some degree of vision loss that requires accommodations and support to reach their potential in school. Four vision professionals, who have experience of retinoblastoma, review the supports children may need, and what parents can do to help secure them.

Microscope image of coronavirus

Retinoblastoma Care During the COVID-19 Pandemic

COVID-19 continues to impact life and medical care. WE C Hope CEO Abby White reviews the facts of COVID-19, how we can protect ourselves and others, COVID testing, retinoblastoma care during the pandemic, safe travel to medical care, and how to support ourselves and our children.

Eleni stands on a waterside path. A little distance behid her, a fountain shoots a tall jet of water high into the air.

Life After Enucleation: 8 Retinoblastoma Survivors Share Hope

Despite advances in eye saving therapy for retinoblastoma, removing a child’s eye remains the most common treatment worldwide. Rb survivor and WE C Hope CEO, Abby White, shares her perspective of life after enucleation, and experiences from seven fellow survivors, offering hope to parents facing the reality of enucleation.

Enucleation, Life and Support: A Parent and Survivor Perspective

When a child has retinoblastoma, removing the affected eye remains the most common treatment worldwide to save life. Support is vital throughout treatment and long after. Lori and Grace Padilla share the perspective of a parent and a young adult survivor, their thoughts on enucleation, and the benefits of in-person support groups.

A boy wearing a hospital gown lies in hospital bed. He is attached to many monitors and tubes, smiling and giving a thumbs up.

10 Things Parents Want You to Know About Retinoblastoma

Caring for a child with retinoblastoma and healthy siblings is a complex journey for parents, from before diagnosis, through treatment, and beyond. Rb Mom and WE C Hope USA director, Lori Banos, shares 10 key messages parents have for health care professionals, fellow parents and the wider community.